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Coping with Chronic Illness
 

Does This Situation Describe Your Concern?

The Center for Work and Family Life is available to help in the following ways:

  • practicing better self-care
  • activating and expanding your support sytem
  • applying and integrating the information found in these book & web resources into your daily living
  • connecting you with providers or community resources that specialize in this topic

Please call CWFL to request personalized assistance on this topic

Our phone is 213-821-0800

Reading List Notations:

Green font indicates books that have been read by Center for Work and Family Life staff.

The Center does not specifically recommend or endorse any particular literature, nor does the absence of books from this list represent a recommendation against such works.

The Center for Work and Family Life would like to thank and give credit to the Stanford University Faculty and Staff Help Center, which was instrumental in helping to assemble this reading list.

Web Resources Notations:

The links listed are being provided as additional resources for you. Most of these are not affiliated with the Center for Work and Family Life.

Neither the Center, nor the University, is responsible for these websites, their content or the referral information they provide. As such, we encourage you to be an educated consumer in using the links to take you to the resources available for that topic.

If you have any questions, comments or find information on this page that is incorrect or no longer current, please contact us at (213) 821-0800 or at cwfl@usc.edu.

Download our pamphlet on this subject by clicking on the image below...

Smoking Cessation

Reading List

Kabat-Zinn, Jon (1990). Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress, Pain, and Illness. New York: Dell.

Klein, Robert, & Landau, M. (1992). Healing the Body Betrayed: A Self-Paced, Self Help Guide to Regaining Psychological Control of Your Chronic Illness. Minnetonka, MN: Chronimed.

Selak, Joy H. and Overman, S. (2005). You Don't Look Sick: Living Well With Invisible Chronic Illness. Binghamton, New York: Haworth Press.

Topf, Linda, & Bennett, H. Z. (1995). You are not Your Illness: Seven Principles for Meeting the Challenge of Illness. Edgartown, MA: S & S Publishers.

Wells, Susan Milstrey (2000). A Delicate Balance: Living Successfully with Chronic Illness. New York: Perseus.

Web Resources

The ALS Association (ALSA) is the only national not-for-profit health organization dedicated solely to the fight against ALS. ALSA coversl all bases - research, patient and community services, public education, and advocacy. Their mission is to improve the quality of life for those with amyotrophic lateral sclerosis and to find a cure for it.

The Alzheimer's Association seeks to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. Their website provides a plethora of resource information, including housing options, the right care options, and community programs and support services.

The American Hospice Foundation supports programs that serve the needs of terminally ill and grieving individuals of all ages.

The American Lung Association, the nation's oldest voluntary public health organization, works to prevent lung disease and promote lung health with research for cures, advocacy to improve air quality and education to help sufferers and caregivers manage their chronic lung diseases, including chronic obstructive pulmonary diseases such as asthma, emphysema and chronic bronchitis.

The Aplastic Anemia & MDS International Foundation is an advocacy and support organization for patients with bone marrow diseases. Their services are free.

The ARCH National Respite Network can offer temporary relief for caregivers and families who are caring for those with disabilities, chronic or terminal illnesses, and the elderly. This program is a national network of respite and crisis care programs. A national respite location service, guides for starting respite programs in communities,and fact sheets on a variety of topics related to respite and crisis care may be found on this website.

The Blood & Marrow Transplant Information Network (BMT Infonet) strives to provide high quality medical information in easy-to-understand language, so that patients can be active, knowledgeable participants in their health care planning and treatment. In addition to publications, BMT InfoNet offers patients and survivors emotional support.

The Breast Cancer Network of Strength, formerly known as Y-ME National Breast Cancer Organization®, provides immediate emotional relief to anyone affected by breast cancer. Their mission is to ensure, through information, empowerment and peer support, that no one faces breast cancer alone. The organization raises money to fund YourShoes, a Breast Cancer Network of Strength peer support program that includes a 24/7 breast cancer support center staffed by trained breast cancer survivors providing peer support through a toll-free hotline, e-mail, support groups, outreach programs, breast health awareness workshops, wigs and prostheses banks for women with limited resources, and advocacy on breast cancer related policies.

The Cleaning for A Reason Foundation offers free professional housecleaning, and maid services to improve the lives of women undergoing treatment for cancer - any type of cancer.

Healthfinder.gov covers over 1,600 health topics from trusted sources, has a locator for doctors, health centers, organizations and public libraries, and includes free interactive tools to check your health, get personalized advice, and keep track of your progress.

National Brain Tumor Society (NBTS) mission is to bring together the best in brain tumor research and supportive patient services. They offer hope to patients, families, and caregivers during every stage of the treatment journey and invest wisely and strategically in innovative research that will lead to advances and ultimately to a cure.

WebMD provides valuable health information and tools for managing health.

Health Information Service Locator

Medline Plus Directories
MedlinePlus provides links to directories to help you find health professionals, services and facilities.

American Hospital Directory database of information about hospitals is built from both public and private sources including Medicare claims data, hospital cost reports, and other files obtained from the federal Centers for Medicare and Medicaid Services (CMS).

Hospital Compare (U.S. Department of Health and Human Services) provides information on how well the hospitals in your area care for all their adult patients with certain medical conditions. This information will help you compare the quality of care hospitals provide.

AMA Physician Select (American Medical Association)
Basic professional information on virtually every licensed physician in the United States.

Nursing Home Compare (Medicare) provides detailed information about the past performance of every Medicare and Medicaid certified nursing home in the country.

Find a Nutrition Professional (American Dietetic Association) a national referral service that links consumers, physicians, food manufacturers, distributors and restaurant owners and managers with dietetics professionals.